DIRECTORY FOR VOLUNTARY ORGANIZATIONS

Do you know anything about Cornelia de Lange Syndrome? Do you need a bereavement group on the other side of the country? The Directory of National Genetic Voluntary Organizations has an endless list of national support group organizations for all kinds of diseases and life altering experiences. These organizations can provide information on local chapters all over the US. Local voluntary organizations keep educational materials and lists of area support groups.

http://www.geneticalliance.org

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